“It took me 29 years to get diagnosed, and I don’t want anyone else to have to wait that long”.
"It can do, because those who experience it may just assume they are experiencing these symptoms from 'standing up too quickly' as often this can cause dizziness or a sudden loss of vision. Dizziness and light-headedness are also common symptoms of low iron, so again this could be misdiagnosed as an iron deficiency as opposed to PoTS.""The tilt table test is one of the common ways to diagnose the condition.
"To treat an episode, you should lie down and raise your legs. There are also lots of ways to reduce symptoms such as drinking plenty of water, keeping active and avoiding long periods of standing. "A health specialist may also suggest a beta blocker which decreases the heart rate, midodrine which narrows blood vessels, fludrocortisone which decreases the amount of sodium lost in your urine, and SSRIs which is a type of antidepressant that can affect how your nervous system works.
"However I would advise speaking to your GP if you think you may have PoTS as they will be able to refer you to see if you need a diagnosis. I would also advise making the relevant lifestyle changes to reduce symptoms as a first step before heading down the medicine route."
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