'After 10-Plus Years of Painful Periods, I Was Diagnosed With Stage 4 Endometriosis'

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'After 10-Plus Years of Painful Periods, I Was Diagnosed With Stage 4 Endometriosis'
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'Painful periods are not normal.' — Rainelle_

In 2020, Rainelle had her first laparoscopy surgery and was diagnosed with stage four endometriosis.

"When I found out that I had stage four, it was kind of depressing," Rainelle says. To wake up from surgery and have your condition be confirmed is one thing, but to have it be even worse than you thought it was,"it's traumatizing" she says. Still, Rainelle remained hopeful — she was under the impression that the laparoscopy could and would remove her endometriosis.

But a year after her first surgery, Rainelle started to experience more intense and excruciating pains than those she'd had prior to surgery."Every day, I was in pain," she says. This time, it appeared in her hips and pelvic floor. She felt like she was constantly having contractions."I just started doing more research after my surgery because the symptoms weren't going away. I started having a lot of pain again.

When she went back to the doctor who had performed the diagnostic laparoscopy,"My doctor actually told me, 'I wasn't able to reach the bowel part of your endo because I don't specialize in that,'" Rainelle says."I spent two years with that doctor just for him to tell me he couldn't even perform the rest of the surgery that I needed."

Rainelle was frustrated, to say the least."I ended up switching doctors and taking my health into my hands again," she says, this time researching other endo specialists who had experience treating more severe forms of the condition.The second surgery was more invasive, and during recovery, Rainelle faced muscle spasms, cramping, and an allergic reaction to a painkiller she'd been prescribed.

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