“They seemed to think I had this mad list of demands for services and wild expectations,' the girl's mother wrote in her complaint to Enable Ireland. 'We only ever wanted a diagnosis so that she could get support.'
A FAMILY THAT challenged an intellectual disability charity over its services for their daughter said they have “no faith that the situation will not be repeated with other families”.
Regarding the recommendation to watch American reality TV programme Nanny 911, the girl’s mother wrote to the charity that the advice was akin to being told her daughter’s complex needs could be treated by putting her on “a naughty step”. Before the nationwide reconfiguration of services, the family were part of a separate group that worked with children with intellectual disabilities.
“Notwithstanding the view of the two clinicians that their behaviour was at all times professional, the panelists acknowledge that this was not the perception of the complainant.” “We were told it would not but the reality is that all these teams have to process files as they come in,” the girl’s mother said.
Enable Ireland is the lead agency for 20 Children’s Disability Network teams, of which there are 91 teams in total across the country. ‘Constant fight for transparency’ Families United for Support and Services, also known as Fuss, said it can be a “constant fight for families to get transparency” when navigating the sector.
Enable Ireland response In its response to The Journal, Enable Ireland said it encourages and welcomes feedback from parents and all such feedback is considered as part of its ongoing efforts to improve the service.
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