A 15-month-old from East Kilbride who lost her life to a rare disorder has been at the heart of a fundraising campaign by the Children's Hospices…
A 15-month-old who lost her life to a rare disorder has been at the heart of a fundraising campaign by the Children's Hospices Across
The Unwavering Care 2024-2028 Strategy highlights how no family has to endure their child's death alone. “Families told us there are three critical stages where they need CHAS – when they learn their child is seriously ill and may die young, helping their child to live well and also help them to die well with ongoing bereavement support.
She continued to hit all of her milestones but when she was six months old, Ainslidh noticed she started slumping and was losing coordination.After initial tests came back normal, Amelia was sent to Queen Elizabeth Hospital in Glasgow for an MRI. “We were so relieved, but then the consultant told us Amelia likely had Mitochondrial disease. He explained how it affects the part of every cell that creates energy.
She said: “They told us Amelia would not live to see her second birthday. I held Amelia and cried the whole day.was being ripped apart. Olivia just wanted to be an amazing big sister. Seeing her help Amelia open presents on Christmas morning is a moment I’ll cherish forever.”
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