Farrell’s friend, Emma Fogarty, was born with the condition 40 years ago last month and doctors did not expect her to live.
Colin Farrell is to run the Dublin Marathon with a friend who has epidermolysis bullosa or butterfly skin.
“The doctors told my parents I wouldn’t last a week and it would be better off if I didn’t because life would be so hard and I would have no quality of life.”In her 20s, she was diagnosed with and survived cancer in her 20sd.“It’s been a hard one but I also like to say, ‘I’ve survived it but I’ve also lived it,’” Ms Fogarty said.Emma Fogarty, Ireland’s longest living person with the most severe form of EB, celebrating her 40th birthday at Killashee Hotel & Spa.
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