Barry Jones was given the devastating news that he has motor neurone disease earlier this month - and now has around two years left to live
A dad-of-four is facing a race against time after being diagnosed with the progressive and fatal motor neurone disease .
READ MORE: Symptoms of contagious '100-day cough' doing the rounds as Ireland sees highest cases in yearsTalking about how the diagnosis impacted him, Barry, of Pembrokeshire, confessed it left him initially "crushed". He declared, passionately stating to WalesOnline: "In my mind, I can't be ill, I'm strong, I work out, I do martial arts, I work hard.
Despite his determination, the reality hit hard the next day at work: "I went to work the next day. When they saw me walk in they were like 'Listen, you are not fit to be on here, you have to go off site'. Then I had my appointment with a neurologist and me and Holly were given the bad news that I have all the signs of motor neurone disease, and it was two years to go."
Barry has also shared his perspective on MND, highlighting the scarcity of research: "It is such an unresearched disease, the NHS hasn't got a clue about it. Since then, Holly and her mother have been looking at alternative medicines and treatments, what causes it or what might help prevent or longevity."
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