Doctors Still Don't Know How to Talk About Down Syndrome

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Doctors Still Don't Know How to Talk About Down Syndrome
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A new study sheds light on the role of bias in prenatal diagnoses

early 18 years ago, I gave birth to a healthy baby girl on a Friday night in late December. She was our first child, and we marveled at her big blue eyes, her shock of black hair, and her tiny, delicate features. We named her Penny, after her grandmother.

Penny’s diagnosis came a long time ago, but the discomfort, limited information, and truncated imagination for our family back then is similar to what many women experience prenatally today. Alooked at the role of bias in prenatal screening experiences and found that, according to the parents of children with Down syndrome surveyed, obstetricians frequently framed the diagnosis as a bad thing and failed to provide accurate and up-to-date information about the fetus’ condition.

According to the American College of Obstetricians and Gynecologists, pregnant people should receive an array of options with a prenatal diagnosis. They also should be offered accurate, up-to-date, and comprehensive information about Down syndrome.

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