Dublin child diagnosed with rare degenerative disorder after losing her sight

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Dublin child diagnosed with rare degenerative disorder after losing her sight
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“It’s going to continue doing that until she won’t be able to eat, to talk, to walk and she will be completely dependent on us. Unfortunately, she won’t have a long life either.”

Her mum Jolene explained that teachers had pointed out issues with clumsiness, but they initially thought it was a sensory problem and sought help.

The Dublin woman explained that it took a while to realise it was Evelyn’s sight, adding: “It’s not the first thing you think of. “She was coming in from the bright outside, into darker lights indoors and she was feeling the walls.” When they reached the hospital, doctors were concerned that she didn’t have a temperature which was common with seizures and she had lost her sight rapidly the previous year.

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