Dublin native Kalebh Fynes is cycling from Dublin to Galway in support of charity DEBRA to raise awareness for a rare skin condition which took his brother Aaron's life
Dublin man Kalebh Fynes has taken on the challenge of cycling from Dublin to Galway this bank holiday weekend to bring attention to a rare skin condition.
READ MORE: Cork boy Bobby, 4, starts pre-school despite battling skin disorder EB known as Butterfly Skin "We'll wake up in the morning and do the last stint then from Athlone to Galway. My father will have the support van there when we arrive in on the Saturday - to take all the bikes back to Dublin."
The Dublin man explained that fundraising for DEBRA Ireland has become an annual tradition for him, as he brings awareness to the rare disease which claimed him brother's life. Kalebh didn't get a chance to know his brother as an adult due to the heartbreaking disease, but he has fond memories of him - calling him 'the glue of our family'.
"Proving to Aaron in a way that I still look up to him and even after he is gone he still influences my life and the life of others around me."
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