I Have to Live in a Bubble—and Each Day Is a Potential Medical Emergency—but I Am Still Empowered
project, a series of personal and informative stories that shed light on those with Invisible Disabilities in honor ofEDS is a connective tissue disorder that often goes hand in hand with MCAS. EDS causes overly flexible joints, weakened blood vessels, and problems with the heart, intestines, and uterus, among other things.
Throughout much of this time, I had a boyfriend who was wonderful to me. But my illness destroyed our relationship. He was put in the position of being my caregiver and it just changed the dynamic of our relationship. It wasn’t good for us, no matter how much we loved each other. So after 15 years together, we separated in 2016 and I moved to Oregon for a fresh start.
Taking the medicine got me to a much more stable place. I was able to paint with watercolors, which allowed me to develop my art further, and I worked on my photography, too. I even felt strong enough to work more hours, and my digital marketing agency grew.
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