Girl unable to breathe at times due to five-year wait for spinal surgery, report finds

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Girl unable to breathe at times due to five-year wait for spinal surgery, report finds
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Teenager’s spinal curvature deteriorated from 30 to over 135 degrees while waiting for operation in Temple Street hospital

The 17-year-old, referred to as Ivy in the report, told investigators about the enormous toll caused by the uncertainty around her surgery, both physical and mental. She could not meet her friends, go to school “or even breathe at times” as the curvature worsened.

The report found the administrative actions of CHI had a negative impact on Ivy’s life and made seven recommendations to address these concerns, including an audit of the waiting list for children’s scoliosis care and a change to allow for a patient or their family or GP initiate a review of their own care.

In 2017, the OCO published a highly critical report about ongoing delays in scoliosis care. The Government subsequently invested in additional staff and theatre space but a promise that no child will have to wait longer than four months for surgery has yet to be kept. Currently, 309 children are waiting for scoliosis treatment.

CHI said it fully accepted the report. While declining to comment on Ivy’s case, it said senior officials would meet her and her family to discuss “learnings” from the report.

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