Illness kills 9,000 people a year despite 80% of premature cases being preventable
With some exceptions, the “patient voice” is not heard in Ireland, she said. “Patients are not organised to a large extent and their voice is only heard when an adverse event occurs.”
“Patient alliances for numerous diseases are common across Europe and play a vital role in providing a platform for the patient experience, which informs policymaking,” Ms Harney said.Heidi Kingston told the launch of her experience of having a stroke at the age of 32. “I was in complete shock. I never knew that someone my age could have a stroke. I thought it happened to people older than me,” she said.
After lengthy rehabilitation, she has resumed her doctorate and is five months pregnant. “I’m the happiest I’ve even been in my life,” she said, while recognising that “recovery is a lifelong journey”., which describes itself as a patient- and carer-led alliance, said progress is needed on early detection, timely diagnosis and equitable access to care for patients with CVD.
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