Spinraza is only treatment available for those with spinal muscular atrophy
drugs group has again decided against approving the only treatment on the market for the rare muscle-wasting disease spinal muscular atrophy .
The application by Biogen will now be considered by the HSE leadership team in early June, he told the Oireachtas health committee. Ms Conway-Walsh said it was “wholly unacceptable” that Spinraza was approved in the UK but not in Ireland. “Time is of the essence” as some of the children who urgently need the drug are “shutting down”.
Ireland Latest News, Ireland Headlines
Similar News:You can also read news stories similar to this one that we have collected from other news sources.
‘Slam dunk’ conflict of interest in children’s hospital review, PAC hearsSome PwC consultants who advised HSE on project working on investigation of overspend
Read more »
Irish holidaygoers urged to apply for free European Health Insurance CardHSE urges Irish holidaymakers to apply for free European Health Insurance Card this summer
Read more »
'Wholly unsatisfactory': Harris pressed in Dáil over recruitment freeze in the HSEHarris told the Dáil there isn't an embargo in the HSE and that 'sensible' decisions were being made
Read more »
Irish mum slams HSE for making family 'prisoners in our own home'Her daughter, who needs round-the-clock care, has an incurable illness known as Rett Syndrome
Read more »
Chaos in HSE looms as 17,000 staff back industrial actionThe dispute has come to the boil mainly because of a refusal to consider pay rises
Read more »
HSE apologises over letter concerning mental health services in north DublinCopy of what appears to be a HSE letter said services from Donaghmede, Raheny, Edenmore and Kilbarrack were to be withdrawn
Read more »