Michele Canning is one of 5,000 people in the UK each year to develop a rare form of heart failure.
In Scotland, the first registry of takotsubo patients is being developed.
"It could be somebody who copes very well and then they have a moment when signals don't connect in the brain like they normally do. "This is very much false, in fact in Northern Ireland twice as many women die from coronary heart disease than breast cancer," he said.The Department of Health was unable to provide statistics on the number of people in Northern Ireland who have had broken heart syndrome.
"The Department already ensures that, in the development of health promotion strategies and plans, we include relevant actions targeting women, or men, where there is a difference in behaviours or outcomes," the department said in a statement.
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