Carlow family reveal heartbreak of waiting five months to bring ill baby home from hospital
The devoted parents of a baby with a rare condition have told how they are facing an agonising wait to bring her home from hospital.
The tot is currently in Our Lady's Children's Hospital in Crumlin in Dublin and cannot be discharged until a home care package, including specialised equipment and a nurse to care for Evie seven nights a week, is finalised. "It's unknown how long this will take. We have been in Crumlin since December 5th 2018 and we've been waiting to go home for over seven weeks now and just when we thought we were close it has again been put on hold."
The tot's condition was discovered when Katie was 20 weeks pregnant and medics warned that Evie might not even survive to birth.
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