About half of MS sufferers say a friend or family member provides them with care, with 35% needing more than 31 hours per week
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Devereux is speaking following the publication of a survey by MS Ireland that highlights the needs of those living with the disease. The survey found the vast majority of respondents reported that their diagnosis affects their daily lives, with 31 per cent indicating it has had a substantial impact.Alison Cotter, advocacy and research officer with MS Ireland, says there are different types of MS and it is a “very varied disease”.
“That’s a full-time job on top of the rest of their life. This is a powerful statistic around the importance of carers to keep people living with MS at home,” she adds. Rebecca Maguire, assistant professor in clinical psychology at Maynooth University – and a person living with MS – says the challenges faced by those with the condition are “quite consistent”.
Maguire says there are practical things that could be done to improve the lives of those with MS, such as a greater provision of services, particularly in more rural areas. Living in Limerick, Devereux sees a neurologist every 18 months, though she says she is “lucky” as she has gone private. There is a need for psychological support, too, she says, to assist people to come to terms to just how much life will change.
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