Meet five-year-old Albie who has a rare genetic disorder that means playing outside in the fresh air could kill him

Fund set up to help five-year-old boy with rare genetic condition

And, as Rebecca expected, after being examined a third time, it came to light that Albie was suffering from pneumonia on his left lung.

"But in April his breathing got so bad I had to take him again, and that's when, on the third time of asking, we found out what the root of the problem was."We thought he'd respond to the antibiotics and be up and active again in no time. The only chance of survival Albie has is to undergo a bone marrow transplant which, if successful, will rid him of CGD and enable his white blood cells to work properly.

Before the transplant, Rebecca and Alan want to take Albie and his sister, Jessica. eight, on holiday one last time in case their precious son doesn't make it. The tot does go outside occasionally when it is deemed 'safe' but Rebecca and Alan are extremely cautious.

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