Marilyn O’Connor experienced deep despair and thought about euthanasia immediately after a motor neurone disease diagnosis, but now she is determined not to let the illness define her
A neurologist diagnosed MND following a series of tests.
Since her diagnosis, O’Connor has lost the use of her hands and arms and struggles to keep her neck upright without a neck brace. She can walk short distances when someone supports her. “I still go out on little shopping trips and to meet friends, but I’m exhausted afterwards.” With a large number of clinical trials currently in train, Prof Hardiman believes there are grounds for optimism regarding future medicines for the disease. She refers specifically to the European study, Precision ALS which Irish researchers are leading. “This study aims to identify different types and sub-types of the disease to get more effective drugs to slow down and stop the disease,” says Prof Hardiman.
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