In 2017, Farah Mirizadeh was diagnosed with Spinal Muscular Atrophy (SMA) and given maybe seven to eight months to live, according to her parents.
Her father, Aykhan Mirizadeh, and mother, Sabina Barkhu, spoke to KIRO 7 about their experience raising a child with SMA.
Researchers at Johns Hopkins University say that SMA may not present itself as a condition until a little later in life. Farah’s parents say she is taking the first-ever at-home treatment for SMA called Evrysdi, which was only just approved for use in children in August 2020, according to the FDA.Aykhan says the medication has manifested everything she’s noticed for years.
“She’s still with us, she’s thriving wonderfully. There is hope. You just have to find the right people, the right doctors, the right support system, and hold on to that glimmer of hope because we did.”
Ireland Latest News, Ireland Headlines
Similar News:You can also read news stories similar to this one that we have collected from other news sources.
Family of Huron County mother missing for 5 years demands answersAccording to Sylvia Colon, Executive Director and Co-Founder of Cleveland Missing, Dean’s disappearance is under unusual circumstances.
Read more »
Microsoft will shut down AltspaceVR on March 10th | EngadgetMicrosoft announced this week it would shut down AltspaceVR, the social virtual reality platform it acquired in 2017, to focus its Mesh mixed reality tech..
Read more »
GOP investigations of Biden to test Chairman Comer’s powerWASHINGTON (AP) — In early 2017, freshman Rep. James Comer found himself aboard Air Force One with the country's two most powerful Republicans , President Donald Trump and Senate Majority Leader Mitch McConnell.
Read more »
Sundance premiere ‘Cat Person’ a cinematic litter box serving cheap ‘thrills’The movie “Cat Person,” based on the viral New Yorker short story that touched a cultural nerve in 2017, should be called “Camp Person.”
Read more »
Top Seeds Iga Swiatek, Coco Gauff Upset at 2023 Australian OpenWimbledon champion Elena Rybakina has eliminated No. 1-ranked Iga Swiatek and 2017 French Open champion Jelena Ostapenko has defeated Coco Gauff in the Australian Open's fourth round.
Read more »
'I Wish Ripple Had Given Away More XRP,' Executive Says, Here's WhyRipple CTO wishes more $XRP had been given away xrpsec ripplesec ripplexrp xrparmy xrpcommunity ripple
Read more »