Families with a child in hospital in Northern Ireland can face extra costs of about £350 a day, research by the Northern Ireland Children's Health Coalition says
Adam died on 3 August 2022 after fighting cancer for 33 months."You are starting to count pennies and say: 'We need that amount of money for diesel to get us up and down to hospital for five days this week and we have that for food'," said Mr Watson."You need money to keep that child as comfortable as possible."
But she added: "No family wants to be known as a charity case, that you are having to rely on somebody dropping money round or you are having to rely on family. Mrs Watson said Adam was aware of the cost-of-living crisis and was watching the news when it talked about people having to make a choice between feeding their family or heating their homes.
Instead, she said, the research found families were "going to their own parents to ask for income support because they do not want to necessarily access the welfare system". Its co-chairperson Alison McNulty said that money would help reduce the anxiety families have to bear because of the physical, mental, and practical impact of having a child in hospital.
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