This is pretty incredible stuff
“Research shows that there should be one Parkinson’s nurse specialist for every 300 patients yet in Ireland in 2019 there are only five specialist nurses for the 12,000 patients and three of these nurses are based in Dublin. Parkinson’s patients are expected to travel abroad for Deep Brain Stimulation surgery – a life changing procedure which should be available here," said Fianna Fáil spokesperson for health Stephen Donnelly.
“Despite the fact there is no cure; patients are not automatically entitled to a long term illness scheme. The Association itself is not in receipt of any core funding, limiting their ability to provide services to patients and families right across the country. "I want to know if the Minister will address the discrepancy between patients who have long term illness support versus those who have a medical card. I want to know why the number of specialist nurse practitioners dedicated to supporting people with Parkinson’s is so low and I want to know if the Minister will finally recognise the work of the Parkinson’s Association and if he will increase their core funding.
"Parkinson’s is a life changing progressive and debilitating illness, as it was put to me outside last week’s demonstration, it is a life sentence not a death sentence. Patients deserve access to specialised care and treatment options in their own country. Forcing them to travel abroad and far from their homes to access care only compounds their suffering", concluded Donnelly.
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