'We need to do right by families': Call for HSE to fund drug for rare disease after NHS approval

'We need to do right by families': Call for HSE to fund Spinraza after NHS approval

Sam Bailey, who has SMA, at a recent protest in Dublin to demand funding for the drug. Image: Orla Ryan/TheJournal.ie Sam Bailey, who has SMA, at a recent protest in Dublin to demand funding for the drug. Image: Orla Ryan/TheJournal.ie THE HSE HAS been urged to approve funding for the use of the drug Spinraza in the treatment of spinal muscular atrophy in Ireland following approval by the NHS.

The treatment will be made available to the youngest and most severely affected patients immediately. Related Reads 10.03.19 'We are failing these children spectacularly': Row over drug with 'exorbitant' cost rumbles on 28.02.19 'Look in my child's eyes and tell him his life is not worth saving': Parents call for access to medication

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