A woman with a rare disorder meaning her skin grew too fast for her body has died aged 32.
Hannah Betts, 32, was an ‘inspiration’ with her positive attitude to the ultra-rare condition that she lived with from birth.Hannah, from Great Yarmouth in Norfolk, was born with Harlequin ichthyosis which causes the body to make too much skin.Her sister Lucy Betts, 35, who has the same condition, said: ‘I still don’t think I can believe she’s gone‘It’s a very big rollercoaster of emotions. It’s really hard.
Harlequin ichthyosis is an incurable genetic condition that results in thickened skin over the entire body. It affects around one in 300,000 people.Hannah Betts with dad Clive and mum Jan Lucy said that she and Hannah had to carry out strict daily routines to stop their skin from cracking. This included morning baths to soak in before rubbing off an excess layer of skin, as well as moisturising throughout the day.‘We went through a lot together that we couldn’t explain to anyone else. I knew exactly how she felt.‘We were so lucky to have her in our lives. She made everything so much better.‘I’ll always remember her smile. She was so loving – she loved with her whole being.
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