Kaftrio approved for use in group of CF patients in January 2022 but access was held up by row between HSE and manufacturer
Agreement reached between HSE and manufacturer after more than a year, allowing children to access life-changing KaftrioLuke Kennedy and his mum, Caroline Poynton, were among the people who attended the 'Support the Kaftio 35' protest outside Leinster House in September 2022, calling for a resolution to the dispute that prevented children with cystic fibrosis from getting Kaftrio therapy. That dispute has been resolved. Photograph: Shane O'Neill/Coalesce.
The HSE says it has approved Kaftrio for use by children aged six to 11 who were previously deemed ineligible for the drug, following “robust and lengthy engagements” with the manufacturer, Vertex Pharmaceuticals. Last year, 140 children with cystic fibrosis were given access to Kaftrio, which can greatly improve quality of life. However, the 35 other children, aged between six and 11 but with a different genotype, were forced to wait for access due to a price dispute between the HSE and Vertex.. Doctors treating the children accused Vertex of treating them as “pawns for greater profit” for failing to make the drug available.
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