Using Global Awareness Day to amplify the voices of people living with MND in Ireland
Two years ago Eileen Butler started to notice her voice was changing. Words were beginning to sound different; her mouth wasn’t moving in the same way it normally did. Nobody else could hear it, but she knew something was wrong.
“When I was first diagnosed, I didn’t know how fast this was going to happen. It was very frightening. You start thinking of the kids and wondering if I’ll be around when they finish school and college,” she said.Justine McCarthy: Clare Daly’s dog-whistle to haters of the media wasn’t just hypocritical, it was recklessSitting in a bright yellow chair in her sittingroom in Co Meath, her crochet hooks are placed beside her. She uses them regularly to make shawls and blankets.
“Tomorrow is not guaranteed for any of us, so you just have to do your best for now. I try to not think too much ahead.” She was speaking in advance of Global Awareness Day for MND , when the Irish Motor Neurone Disease Association seeks to highlight its campaign Voice4MND, which aims to raise awareness and amplify the voices of people living with MND in Ireland.
One of the biggest things that affect people diagnosed with the condition is the loss of voice. A survey by the charity found 80 per cent of people with MND experience voice deterioration which has a significant impact on their daily lives.
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